Posted by: mattsmom ®
01/26/2010, 00:19:42
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Thank you for the great advice. I will definately contact Martha Murphy. We have an appointment tomorrow with the movement disorder doctor, and hopefully he will be able to give us a diagnosis. I am just praying that they can find some way for him to relieve the symptoms when they get bad because he gets so dizzy. As far as getting medical opinions our options are limited to two doctors that treat children with dystonia and they consult one another. I do feel that they have Matthew's best interest at heart. We don't plan on getting dbs right away. Ultimately that will be Matthew's decision. Any medications we have tried so far have not reacted well with him. Maybe tomorrow we will have some answers. I will let you know how things go.
Bye for now, Cathy
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