Aww you guys are so nice and so full of good information. It has been a real pleasure reading on here and on the main site. The positive stories really move me and all the fist hand examples of treatment from the forums. It's also really cool that there is nice blend on here of oldtimers and newcomers, I think that really shows how important support and understanding is...to be the receiver at first and the giver later. <3 I thought I would let you all know that I did do a follow up with the ENT that thought it was SD back in February. I called and asked for the botox shots but of course he had to see me again before he would go ahead with that *grin*
Anyhow..the end result is I don't have SD. He said my vocal cords are floppy and weak. That botox would only make me worse. So it is just another symptom of whatever the rest of the stuff going on with me is neurologically. He did say he might be able to give me collagen injections to stiffen up my vocal cords after I have a dx from the movement specialist, but wont do it until then. I am also gonna follow up with a speech pathologist to learn some strengthening exercises and see if that helps. I don't care, I will try anything and I will be their best pupil ever! (least I hope to be *grin*). I felt a bit lost after the appointment, but am hoping that it will just be another piece in the puzzle that helps them put together what is going on with me.
It's funny in my first post I asked to join your club and now I know I dont really belong here. But I do feel that I understand a bit of what this horrible disorder must be like for you guys...even if it is different at a baseline. I too have a horrible time speaking, using the phone, getting embarrassed in social situations, learning to be a better listener and choosing my few words with care. So, I am glad I learned about SD and hope to be an advocate for you all. If anything this has taught me so much, there will never ever be a day I walk away from someone that is having a challenge getting their words out, I will always wait and look them straight in the eye and let them finish.
Best wishes and lots of love,
Cheeks
