Spasmodic Dysphonia Bulletin Board

Re: Hi new here and new to SD :)
Re: Hi new here and new to SD :) -- cheeks Post Reply Top of thread Forum
Posted by: Sojourner ®
06/16/2009, 20:05:39

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You are not alone! There are many SD patients who want to help you as you travel on your journey with SD. I have had ADSD since 2001, when I was 37. I was diagnosed in August of 2007. I also have a head tremor. The phone is horrible. I don't like to make phone calls and find myself only making them when I cannot communicate in another way. BOTOX is helpful for me. It is quick and easy and well worth the results. Not being able to jump right in on the conversation is isolating when I am around people who don't know about my SD. I have found that my family and friends are patient and want to hear what I have to say, no matter how I sound when I say it. My family would rather I try to talk than writing notes, and they are not much for sign language. Becoming educated, finding medical professionals who will listen to me, surrounding myself with a great support system, and meeting and talking (email too) with other SD patients have all helped me in learning to cope successfully. I attend a local SD support group and love the support and encouragement offered in that setting. Feel free to contact me to chat any time. I love to talk with other SD patients!

Carol
Ohio
rdoles@ieee.org




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