I agree with you Laurie - SD patients definitely should seek information that independently verifies any treatment before they spend money on it. I also know what you are talking about with respect to the people who will not submit their treatments to scientific analysis for verification of effectiveness. Unwillingness to have a treatment regimen evaluated should be a clear signal of caveat emptor! Too bad that these "treatments" don't require the FDA approval for safety and efficacy that a medical device or pharmaceutical requires. (I suppose we can assume they are safe, however, when they don't do anything at all. :))My point is that if people have improvement, even if it is not the 100% removal of symptoms that you seek, they should be heard. They may have knowledge that will help people. I would guess that there are many people who cannot get botox, or don't want botox, or botox doesn't work for them, and these people might be thrilled with a 50% improvement. Just because improvement is not to the point of perfection does not mean that it is without value.
Also, I did not get the impression that SDnoMORE is trying to sell us anything.
As an aside with respect to placebos, there is recent research that shows with respect to diseases/disorders with measurable attributes that treatment with placebos doesn't just make people think they are better, they actually ARE better. Amazing stuff. Perhaps what the world needs is double strength placebos. :)
