Spasmodic Dysphonia Bulletin Board

Re: Under 30 with SD
Re: Re: Under 30 with SD -- lillygirl72 Post Reply Top of thread Forum
Posted by: adamwilcox ®
04/02/2008, 09:56:54

Edit
Dr. Berke at UCLA did my surgery. They said there was a minor chance of bad reinnervation occuring where the old nerves tried to grow back. I had a really good year and a half or so after the surgery.

If you have not tried botox I would definitely suggest trying it first as the surgery is extreme. You will have a large scar and will have trouble drinking liquids for a few weeks. The reason I opted to have the surgery was botox completely knocks out my voice and makes me sound like mini mouse. For a 6'5" guy that is quite embarassing :-)

Moving forward I am trying to find a time to see Dr. Berke again as he has suggested another procedure involving the TA muscle. When I hear more about it I will let you know.




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