Spasmodic Dysphonia Bulletin Board

Re: Thought I was crazy...
Re: Re: Thought I was crazy... -- dcollins Post Reply Top of thread Forum
Posted by: magistramarla ®
03/17/2008, 00:12:00

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Hey Shakyvoiceguy & Donna,
I've been gradually noticing the voice problems over the last couple of years. At first, I blamed it on having some really bad bouts of bronchitis for three years in a row and continuing to teach with my throat hurting. I just thought that I had done some permanent damage to my vocal chords. When I saw an ENT about another problem - Meniere's syndrome - he also "caught" the SD. He sent me to a buddy of his who specializes in Botox treatments for SD, and it has helped me quite a bit.
Donna, I was very interested in the genetic links that you mentioned. I've been seeing a couple of neurologists, who have diagnosed me with a very rare degenerative genetic disease called Spinocerebellar Ataxia. They have told me that the genetic mistakes that have caused the ataxia have also caused the SD and the Meniere's. I'm guessing that the "faulty gene" theory that you mentioned goes along very well with what the neurologists told me.
Thanks for the info,
Marla



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